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CLL Support

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R I P

It is with great sadness to tell you that Mick passed away peacefully on the 14t...
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Is this normal?

We are in the UK. My Husband was diagnosed in 2019. Is prescribed Ibrutinib a...
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Does having CLL really make you 3 times more likely to get (another) cancer, and does CLL treatment add to the risk? - Part 1

1. The risk of developing a Secondary Primary Malignancy "The higher risk of SP...

calquence

I’m 76 years old and was recently diagnosed with SLL. My doctor put me on Calque...

HI! I only joined today.

Unknown territory for me. I will start on Acalabrutinib in a couple of weeks. 😒...
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Immunoglobulin tests

Hi again. Yesterday I asked my GP if I could have my blood immunoglobulin levels...
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COVID, Pneumonia and healthcare

Dear Community, I wanted to update you on my recent experience with COVID-19,...
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Newly diagnosed

Hi my name is Suzanne, and I was diagnosed with CLL in October 2023. I'm at the ...

Achng joints and muscles

Hi all hope today finds you well. Recently posted that my cll is back after 4 yr...
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colouring hair on obinutuzumab and venetoclax

I have finished obinutuzumab and am now just on venetoclax.My hair has been unaf...

MRD Neg at last!

After more than 5years on the I &V arm on the FLAIR TRIAL I was informed today t...
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CAR T was just approved for Relapsed/Refractory CLL/SLL ( Potentially 20% CURE rate)

What are your thoughts/suggestions/comments? Thank you, Pat...

Pulsed Electro Magnetic Fields Math.

Hi,I am a 74 year old Italian woman. I was diagnosed with CLL 5 years ago, by c...
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Survival Rates

Good afternoon. I have now had CLL for one month and had a question for more kno...
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Going down hill fast.

I was in remission a very long time 15 years. 3 months ago I found a lymph node...

Detected with CLL

Hi , i was detected with cll in march 2021 at that time my wbc was 30k but with ...
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Live vaccine for dengue fever

My son lives in Bali. He is in the middle of a very severe bout of dengue fever....
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New Drug!!

Anyone else see this article this morning? This seems like great news. Right? My...

Debilitating Stomach Pain

Hello everyone, I am at my wits end with suffering from stomach pains and swell...
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TP53 Testing

Good afternoon. My oncologist called me last month to tell me that my FISH test ...

A Shingrix thank you

Hi, I just wanted to thank so many of you who have spoken of your side effects ...

Poole Conference 14 March 2024

Theme Navigating Treatment Pathways beyond Chemotherapy. I am on watch and wai...

CLL specialists

Hello, My CLL specialist left town and I am left with only her NP. I am at a ...
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Skin cancer

I am now in my mid-sixties and was diagnosed with CLL four years; I remain on wa...
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Hereditary CLL

Hi Everyone, I was diagnosed in January 2022 and have been on watch & wait since...
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Solutions needed to manage nerve pains ( Post herpetic neuralgia ) after shingles .

I was diagnosed of CLL in 2021. Had FCR as first line treatment. Was on remissio...
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Still on hold for stem cell transplant

David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several...
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on watch and wait for 6 years. Numbers are going up and doc this treatment is coming

So what have people been taking for first time treatments. My numbers are going...
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Cll and Statins - Thank you for your responses

Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting...
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Acalabrutinib v Zanubrutinib side effects

Can anyone suggest why, given the results of a published meta analysis shown her...
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